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You can participate in online Oogcontact meetings via your computer or phone. So you don’t have to go anywhere. It’s an accessible way to meet other members and get information from professionals.

What are we going to do?

Dear Members,

My name is Jeremy van Vliet. I’m 34 years old and from The Hague, and I was diagnosed with retinoblastoma when I was only 3 months old.

I recently began serving as a board member for the Retinoblastoma division of the OOG in OOG Association. I am Edwin van Miltenburg’s successor. I’m curious to know what’s on our members’ minds, so I’d love to get in touch with you all.

How can we help you?

I would like to further explore how we, as the OOG in OOG Association, can best serve our target audience, what is needed, how we can stay in touch with one another, and how we, as an association, can remain relevant to our members.

Are you thinking about joining in and/or actually joining in?

I can’t do this alone, which is why I’m looking for members who are willing to support me in this effort. Your opinion matters, and even if you don’t feel the immediate need to volunteer with us, simply sharing your experiences and opinions can be very valuable. Of course, it would be fantastic if you’d like to continue supporting our target group in a way that works for you.

Introduction

On Wednesday, May 27, 2026, from 8:00 p.m. to 9:00 p.m., we are therefore organizing an online meeting. We’ll have a chance to get to know each other briefly, but (more importantly) I’d like to listen to your ideas on how our association can take the next step in supporting people with retinoblastoma.

I’m looking forward to it and can’t wait to get to know you better.

We’re counting on you to come

We’ve noticed that people sometimes confuse an online peer support meeting with a webinar. This meeting is NOT a webinar that is recorded and can be watched later. This is an online peer support meeting where we’ll have a conversation with one another. When you register, we assume you’ll be attending. If, due to unforeseen circumstances, you’re unable to attend at the last minute, please let us know by emailing info@ver-ooginoog.nl. That way, we won’t be waiting for participants in vain.

Zoom User Guide

If you participate in the online session, you will receive a helpful guide in advance. You can register for this session through May 26. The Zoom link will be sent by 2:00 p.m. on May 27.


Online Meeting on Retinoblastoma, May 27

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