Parents and loved ones

To provide additional support to parents, our association has teams of volunteers. These teams provide information and a listening ear. In the retinoblastoma, anophthalmia, and microphthalmia teams, you’ll find parents who themselves have a child with one of these conditions.

In our private Facebook group, members of the association can connect with each other online. There, you can ask questions and read about others’ experiences. This group includes people who, for various reasons, see with only one eye.

You can also join our WhatsApp community and choose the group that interests you.

• Check out the pages on anophthalmia, microphthalmia, and retinoblastoma on our website.
• Read articles in the library about anophthalmia, microphthalmia, and retinoblastoma.
• Check out the information on anophthalmia, microphthalmia, and retinoblastoma on the Amsterdam UMC website.
• Be sure to check out Minke’s video on our YouTube channel about putting in and taking out her artificial eye. It’s important for a child to learn to do this on their own as early as possible so they don’t develop a fear of it. With a plastic prosthesis, not much can go wrong. You can even drop it.
• Learn more about going to school, studying, and playing sports with one eye.
• This page is for children and teens who see with one eye.
• A tool has also been created specifically for the loved ones of someone with an eye condition. Because when you have a child with an eye condition, your life changes, too.
• Check out these booklets created by the Eigen Gezicht Foundation.
• The (Sch)ouders platform was developed by and for parents of children with special needs. Within this (Sch)ouders center for experiential knowledge, parents can benefit from each other’s experiences.
• On the Oogvereniging website, you’ll find a lot of information about raising a child with a visual impairment.