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What is an ocular prosthesis, and how does it affect your life?

An ocular prosthesis replaces an eye that has been removed. Ocular prostheses come in various shapes and are custom-made. Some people have one ocular prosthesis, while others have two. The implications vary depending on the person and the situation. You can read more about ocular prostheses on these pages.

Fear and uncertainty about the other eye

If you have an ocular prosthesis in one eye, you may worry that your other eye will also deteriorate and that you might go blind. These concerns are completely understandable. Talking to your ophthalmologist can provide clarity. Regular checkups at the hospital are also important. Connecting with others who have gone through similar experiences or talking to a social worker can also help you cope with this situation.

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Putting on and taking off your ocular prosthesis without sight

If you can’t see, it’s hard to check whether your prosthesis fits properly. You’ll mainly learn to do this by feel. By taking steady steps and practicing at a relaxed pace, it will become easier and easier. An ocularist, nurse, or rehabilitation specialist can help you with this. The step-by-step guide below can also help you with this:

 

 

Living with Two Eye Prostheses

When someone has lost sight in both eyes, they often lack any ability to perceive light. This requires a new way of living and moving around. You have to relearn how to find your way around, both at home and outside. This is a process that takes time and guidance.

If you can no longer tell whether it is light or dark, your circadian rhythm may also be disrupted. This can lead to sleep problems, fatigue, and difficulty concentrating. Establishing a daily routine and sticking to a set schedule can help. Discuss these symptoms with your primary care physician or rehabilitation specialist.

Not being able to read as you used to can be a great loss. Fortunately, there are good alternatives, such as audiobooks, audio newspapers, and Braille. Useful websites for this include:
Accessible Reading: audiobooks, newspapers, and Braille
Leesbutler: help finding accessible reading formats

Good support is essential to maintaining safety and independence. Orientation and mobility training helps you walk, remember routes, and navigate obstacles. This increases your independence and self-confidence. Organizations such as Koninklijke Visio and Bartiméus can help you with this.

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Emotional Processing and Grief

Losing your vision or an eye can feel like a loss. Sadness, anger, or a sense of helplessness are all part of that process. It’s okay to feel these emotions. Talking to others, seeking professional help, or connecting with others who have gone through similar experiences can help you cope. Read more about the mental health effects on this page.

Peer Support Through the OOG in OOG Association

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