{"id":6306,"date":"2025-07-21T10:18:00","date_gmt":"2025-07-21T08:18:00","guid":{"rendered":"https:\/\/ver-ooginoog.nl\/bibliotheek\/i-can-actually-see-a-lot-of-things\/"},"modified":"2026-09-09T17:13:59","modified_gmt":"2026-09-09T15:13:59","slug":"i-can-actually-see-a-lot-of-things","status":"publish","type":"library_pt","link":"https:\/\/ver-ooginoog.nl\/en\/library\/personal-stories\/i-can-actually-see-a-lot-of-things\/","title":{"rendered":"&#8220;I can actually see a lot of things&#8221;"},"content":{"rendered":"<div class=\"wp-block-post-date\"><time datetime=\"2025-07-21T10:18:00+02:00\">21 July 2025<\/time><\/div>\n<h2 class=\"wp-block-heading\"><strong>Who are you?<\/strong><\/h2>\n<p class=\"wp-block-paragraph\">\u201cI live in Middenbeemster with my mom, dad, and my 9-year-old brother, Qi\u00ebll. I go to the Blauwe Morgenster Dalton School. I like to dance and swim. I also really enjoy playing outside and doing crafts.\u201d<\/p>\n<h2 class=\"wp-block-heading\"><strong>Why do you see with only one eye?  <\/strong><\/h2>\n<p class=\"wp-block-paragraph\">Her parents explain: \u201cWhen Davine was six months old, we were told she had Neurofibromatosis Type 1 (NF-1). This can be hereditary, but it doesn\u2019t run in our family. So, in Davine\u2019s case, it was a spontaneous mutation. With NF-1, there is a risk of developing neurofibromas (benign tumors) and tumors in the optic nerve (optic glioma), among other things. Because of this, Davine was under the care of an ophthalmologist at the hospital. The course of NF-1 varies from person to person.     <\/p>\n<p>Davine didn\u2019t start walking until she was 20 months old, but once she did, we noticed that she fell a lot. It was very different from her brother. It was as if she couldn\u2019t see properly. She had the most trouble when she had to step down from something, like a curb, a staircase, or in an unfamiliar environment. Davine was still too young to say anything herself, and according to the hospital, there were no other signs that anything might be wrong.    <\/p>\n<p>Unfortunately, this turned out to be the case after all in late 2019. Her right eye began to look different, and it turned out that her retina had already detached, taking the macula with it. <\/p>\n<p class=\"wp-block-paragraph\">\u201cIn early 2020, two attempts were made to reattach the retina, but unfortunately, they were unsuccessful.<br \/>Even though the retina is completely detached, fortunately, the body still accepts it, and so far, it hasn\u2019t caused any problems.\u201d<\/p>\n<h2 class=\"wp-block-heading\"><strong>Tell me about the contact lens you&#8217;re wearing.<\/strong><\/h2>\n<p class=\"wp-block-paragraph\">\u201cDr. Mark and Sebastiaan made a beautiful contact lens for me. I can put the lens in and take it out, and Mom helps me with that. It\u2019s a clear lens with a black pupil in the center. Now it\u2019s less noticeable that I have a gray pupil, and that\u2019s exactly what I wanted. I just can\u2019t sleep or swim with the lens in.\u201d<\/p>\n<h2 class=\"wp-block-heading\"><strong>How are you doing now?  <\/strong><\/h2>\n<p class=\"wp-block-paragraph\">\u201cThat\u2019s great, but sometimes I do want to know what it\u2019s like to see with two eyes. Now that I have a nice lens for my blind eye, I don\u2019t get teased anymore. And people don\u2019t say stupid things anymore, and they don\u2019t look at me so strangely either.\u201d<\/p>\n<h2 class=\"wp-block-heading\"><strong>Do you have to go to the hospital often?<\/strong><\/h2>\n<p class=\"wp-block-paragraph\">\u201cI have to go to the eye doctor twice a year, and then I do all these little tests, and then I get to go home again. I also go to the Princess Maxima Center once a year for a day, and then I get an MRI so they can look inside my head to see how the little balls (ed.: tumors) in my head are doing.\u201d <\/p>\n<p class=\"wp-block-paragraph\">&#8220;When my eye had just started giving me trouble, I had to go there much more often, but luckily I don&#8217;t have to go that often anymore.&#8221;<\/p>\n<h2 class=\"wp-block-heading\"><strong>What are your hopes for the future?  <\/strong><\/h2>\n<p class=\"wp-block-paragraph\">\u201cI hope there\u2019s a doctor out there who can still fix my eye!\u201d<\/p>\n<h2 class=\"wp-block-heading\"><strong>Why did you become a member of the OOG in OOG Association?  <\/strong><\/h2>\n<p class=\"wp-block-paragraph\">\u201cBecause of my mom and dad. They\u2019re hoping to find out more, and they want me to know that I\u2019m not the only one who sees with just one eye.\u201d<\/p>\n<h2 class=\"wp-block-heading\"><strong>Is there anything else you&#8217;d like to say?<\/strong><\/h2>\n<p class=\"wp-block-paragraph\">\u201cI never give up, even though I can only see out of one eye. I can still see a lot.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Davine is 8 years old and has Neurofibromatosis Type 1 (NF-1). In this interview, she (and her parents) talk about her experiences. <\/p>\n","protected":false},"featured_media":6307,"template":"","meta":{"_acf_changed":false,"_daextauttol_enable_tooltips":""},"library_cat":[113],"class_list":["post-6306","library_pt","type-library_pt","status-publish","has-post-thumbnail","hentry","library_cat-personal-stories"],"acf":[],"_links":{"self":[{"href":"https:\/\/ver-ooginoog.nl\/en\/wp-json\/wp\/v2\/library_pt\/6306","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ver-ooginoog.nl\/en\/wp-json\/wp\/v2\/library_pt"}],"about":[{"href":"https:\/\/ver-ooginoog.nl\/en\/wp-json\/wp\/v2\/types\/library_pt"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/ver-ooginoog.nl\/en\/wp-json\/wp\/v2\/media\/6307"}],"wp:attachment":[{"href":"https:\/\/ver-ooginoog.nl\/en\/wp-json\/wp\/v2\/media?parent=6306"}],"wp:term":[{"taxonomy":"library_cat","embeddable":true,"href":"https:\/\/ver-ooginoog.nl\/en\/wp-json\/wp\/v2\/library_cat?post=6306"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}